Links to Alternative Med sites
Information on alternative/ complementary issues, Many different links here
Coalition of Nat’l Ca Coop Groups
Pool your experiences with many others
Sites specifically for Nurses
Variety of links
American Holistic Health Association
The American Holistic Health Association (AHHA) is a national clearing house to connect you with resources you can use to improve your health and well-being. Wherever you are on the path of creating wellness, AHHA assists you to become informed about the many options available in the health care arena today.
Journal Writing/ Expressive Writing
Link to Margie Davis’ site
LINK to org that protects “your rights – helping you make informed decisions”
This website will try to collect and present the stories of long-term cancer survivors who have won the battle against cancer so that a new cancer patient can learn from their experiences in the search for the best treatment.
Savvy Patients.com Site
LINK to Integrative Med extensive links to docs, and much more
Research Portfolio (NCI)
Website allows a look at all research being done under NCI auspices by disease.
Helps people with cancer & their loved ones enhance health/well being, providing a professional program of support, education & hope, all free of charge.
National Women’s Health Network
LINK-first group to question Prevention Trial (Tamoxifen issues) and much more
Cancer and Careers
“Committed to changing the face of cancer in the workplace by providing a comprehensive website & free publications in both English & Spanish as well as offering a series of support groups and educational seminars for employees with cancer; as well as being a resource for their employers, healthcare providers & co-workers.”
MACAFEM – Women’s Health Network
LINK to researcher site on Menopause -stages, symptoms, etc.
State Cancer Profiles
LINK to Government site
The Women’s Calendar
The largest listing of women’s events covering every possible venue, topic or issue important to women. Women’s Calendar is a superb networking tool for women.
Bowel Disorders Diet & Recipes
LINK to info: radiation enteritis, Crohn’s, colitis, irritable bowel syndrome.
American Sepsis Alliance
LINK to org “Sepsis frequently occurs among hospitalized patients, infants, children,elderly. Triggered by bacterial, viral, parasitic, or fungal infection, sepsis often results from events such as trauma, surgery, burns, or severe illness.”
The Noble Circle Project
“Healing physically, emotionally and spiritually. It’s about women coming together to form a community of healing and support for each other. And it’s about empowering ourselves with self-healing tools to aid in our cancer recovery.”
DoD Congressionally Directed MedRes Programs
LINK to research resources programs in prostate, breast, ovarian and more
Gay Men’s Health LINKS
Center for Medical Consumers
LINK to org that protects “your rights – helping you make informed decisions”
Drug Information – Various Sources
LINKS to pharmaceutical sources and non-pharma resources
Independent Drug Information Service
LINK to “RxFacts, the Independent Drug Information Service (iDiS), an innovative program designed to provide physicians with an evidence-based, non-commercial source of the latest findings about the drugs they prescribe
LINK: an independent, publicly funded project that empowers physicians to identify & counter inappropriate pharmaceutical promotion practices. PharmedOut promotes evidence-based medicine by providing news, resources, & links to pharma-free CME courses.
LINK: “Facts & Helpful Information on Drugs, Conditions & Side Effects
LINKS but we have no particular knowledge or endorsements. SOURCES – USA and Other Countries, Info on EFFECTS and more
LINKS Support for those affected by the dangerous side effects of some prescription drugs and devices prescribed to them
LINK to articles of interest
Drug 3K – Prescription Drug Info for Consumers
LINK: Online Drug Encyclopedia. Aproject of European Organisation of Family Health Research (EOFHR)
Patient Privacy Rights
LINK to non profit providing ‘toolkit’ with useful information and forms for privacy
Int’l Strategic Cancer Alliance
“The ISCA is currently focused on assistance to newly diagnosed prostate and breast cancer patients. The leaders of ISCA are committed to helping patients navigate the medical world while consulting with top experts and researching the best available protocols for each individual.”
Families Facing Cancer
LINK: Emotional and Practical Support for families and caregivers
Cooking With Cancer
“Cooking with Cancer is a program designed specifically for cancer care of those persons who are afflicted with cancer, care givers of the patients, and all of those who work in the healthcare industry. The content is recipes researched and tested on patients undergoing chemotherapy and radiation.
In 2003, tired of seeing the same full cans of supplements on daily rounds and untouched meal trays, Dr. Luis F. Pineda enrolled in Culinard Institute to combine the art of cooking with the knowledge of medicine. His motivation is the patients past and present he has provided care for through his 26 plus years as an oncologist.”
Dr Grant Wellness
“Prof Dr. George F. Grant, Ph.D., I.M.D., M.Sc., M.Ed., B.Sc., C.Chem., R.M., C.B.S. Integrative Medical Specialist, world-class professional speaker, corporate trainer, and author. Former Professor, and senior consultant for Health Canada. Analytical Chemist, Toxicologist, Microbiologist, Nutritionist, biofeedback, Stress Management, Pain management, anti aging & Indoor Air Quality Specialist. Founder of the Academy of wellness, 1982. Author of 7 best selling books, former Scientist at U of Sask. Faculty of Pharmacy/Nutrition & Professor at Seneca College in Toronto, senior consultant for Health Canada.”
Visiting Nurses ‘CareGiver Guide’
Information on caring for a patient at home
Ins Healthcare Improvement (IHI) Natl Forum Leadership Summit
LINK: Week long networking and learning ANNUAL event
Legal Issues and Websites
Various links, and more
Medical Malpractice Lawyers
LINK: “…a website dedicated to informing & educating the general public about hiring an attorney for their medical malpractice case. Medical Malpractice Lawyers does not recommend or refer individuals to any specific medical malpractice attorneys, but rather exists to provide you with the tools you need to make an informed decision about retaining counsel”.
Cancer Law Center
LINK to attys “specializing in representing cancer pts who have been severely harmed by their cancer treatment”
Health Care Coach
LINK to site from Natl Health Law Program.
Other Cancer Organizations
Cancer organizations offering various types of assistance.
Minority Health Information
Various resources, not links though a search might locate them
Texas Cancer Center
Information on surgical choices from the book “Making The Right Choice”
National Women’s Health Info Ctr
Many on line medical dictionaries and journals-very inclusive and a link available
Talk to Other Patients
A listserv for those with metastatic cancer
Independent testing of herbal, vitamin and mineral supplements,some feel it is too “mainstream”, a link
Free Airline Flts: Pts InTreatmt
Information piece on Angelflight, LINKS to the and others
Possible Sources for Funds/ Resources for Meds/ MORE Help
Money to help with cancer- related bills
Shop Well With You
“Shop Well with You, only national not-for-profit organization that helps women surviving all types of cancer improve their body-image and quality of life by using clothing as a means towards wellness.”
Genetic Alliance Organization
LINK to Int’l site for education, support, advocacy for people with genetic issues
LINK a nonprofit 501(c)(3) organization that provides free physical activity, health education, and support programs for women affected by cancer.
National Asian Women’s Health Org
LINK-org to improve health status of Asian women/ families through research, edu, public policy Eng/ Cantonese/ Laotian/ Vietnamese/ Korean
Su recuperación física y emocional después de la mastectomía la prepara pare la cirugía y la orienta en su recuperación física y emocional. Aprenderá lo que sucede en el hospital y cómo cuidarse en casa.
LINK to Organization working on Compassionate Use/ Individual Access to Drugs under development. WE HAVE CONCERNS ABOUT THIS
Cancer Information Service
LINK en espanol, to NIH/NCI information
Homes that Help & Heal
LINK to Natl Assoc of Hospital Hospitality Houses
National Council of La Raza
‘Making a difference for Hispanic Americans’ Institute for Hispanic Health
Check Practitioner/ Hospital/ More
Find LINKS that offer info on hospital quality, practitioners records, etc.
American Liver Society
LINK to information on liver diseases
Health Care Coach
LINK to site from Natl Health Law Program
Health Writer Carol Milano
LINK to her site with many articles (NYC-based health writer)
LINK to site w/info on ” how various x-ray, CT, MRI, ultrasound, radiation therapy and other procedures are performed.” Updated frequently
LINK to site with information on many cancers
Medical Dictionaries and Glossaries
Find severallinks here
LINK to digital library of anatomy information
LINK If you’re living w a chronic illness & trying to balance healthy living &—whoa—fun, then you’re DEFINITELY in the right place. If you’re sick of reading depressing, clinical dissertations on disease, then you’re going to feel right at home. If you’re hunting for creative approaches to life, come on in. Online community for babes (who just happen to be chronic).
LINK to non-commercial, evidence-based information website providing consumers with education information, introductions & reviews on important vitamins and minerals.
James Lind Alliance
LINK to UK-based org “Tackling treatment uncertainties together” Looks into patient/clinician research priorities
Weisenthal Cancer Group
“Weisenthal Cancer Group, which provides a laboratory testing method called Functional Tumor Cell Profiling. Weisenthal Cancer Group accepts no financial support from any drug company, medical equipment manufacturer, insurance carrier, professional organization, or hospital group.”
Care.com Senior Care Resource Directory
LINK to national organization with high quality information on caregivers, etc.
Palm Beach County Library Community Health
LINK to Community Health Information Service of Palm Beach County, FL which is home-base for The Annie Appleseed Project
Liver Tumor Advocacy Group
LINK: “to provide information, education, support, options, and hope for those affected by liver tumors”. Toll free Surivor Line 1-877-937-7478
Patient Resource Cancer Guide – publication
“Our trusted patient education publications are the most comprehensive, nationally distributed cancer resources in the United States. We distribute, free of charge, more than 500,000 copies of our guides annually, primarily through physician offices, cancer treatment facilities and patient advocacy organizations.”
mAssKicker – this ain’t no pity party
“The purpose of mAss Kickers is to empower people with knowledge, not to specifically advise people how to address each unique situation.”
Mission “EmbodiWorks is creating a better world by providing definitive, reliable educational resources and supporting advocacy focused on integrative cancer care to reduce cancer risk & improve cancer related survival, quality of life, & whole person health care.”
“The purpose of DiversityRx is to improve the accessibility & quality of health care for minority, immigrant, & indigenous communities. We support those who develop & provide health services that are responsive to the cultural & linguistic differences presented by diverse populations.”
Nursing Home Abuse
“Dedicating to preventing the causes and repairing the consequences of nursing home abuse.
Nursing Home Abuse was founded by the National Association to Stop Nursing Home Abuse (NASNHA), an NGO. NursingHomeAbuse.net exists to raise awareness of the nursing home abuse epidemic, educate the public about its causes, help residents & families prevent abuse, and help victims cope with the consequences of nursing home abuse.”
CUE Consumers United for Evidence-based Healthcare
Annie Appleseed Project joined CUE Consumers United for Evidence-based Healthcare some years ago upon invitation as the group felt they needed a perspective on complementary and ‘alternative’ therapies. Ann Fonfa, president of Annie Appleseed Project, has been the representative attending the annual meeting. Ann is a Consumer reviewer for the Cochrane Collaboration
“With more awareness we can increase this number and further save the lives of children battling cancer and other life threatening illnesses”
ConsumerDangers.com is dedicated to keeping the public informed about consumer dangers and safety issues associated with numerous products that can cause the public harm.
At DropCigarrettes.com is not to push quitting, but to rather highlight the benefits and alternatives to smoking. Their free, trustworthy, and reliable resources will help visitors quit cigarette smoking forever if they decide to make the decision.
Mapping of Patient groups
a self-funded organization driven to provide consumers with unbiased, advertising-free safety and recall information.