Links

Other Cancer Organizations

There are many support and educational groups that offer general information to people with cancer.

Most of these groups are somewhat interested in alternative therapies. They have begun to include speakers on complementary and some alternative therapies at their meetings.

This is caused by the growing patient demand. It is a good thing. These organizations offer lots of help to patients. They are involved in national, regional or local advocacy and you can bring your concerns to them. Most work with specific types of cancer.

Well Spouse Organization
LINK: site for partners, caregivers, etc.

Share the Care
LINK “How to organize a group to care for someone who is seriously ill”

National Breast Cancer Coalition
A national advocacy Umbrella group – Breast Cancer Deadline 2020

International Myeloma Foundation

Immerman’s Angels
LINK: “ONE-ON-ONE CANCER SUPPORT: CONNECTING CANCER FIGHTERS, SURVIVORS AND CAREGIVERS

Cancer Care
Services to patients and families

Susan G. Komen Foundation
National group, funds research, local “Race For The Cure” and breast cancer awareness

Native American Cancer Survivors Network
LINK to community of survivors

Native American Cancer Research
LINK to news, info and support

Women Listen
LINK to an Alaska-based group promoting the physical, emotional & spiritual well-being of women living w/cancer

Pillows For Life
Link to site for survivors to talk to each other

Women’s Cancer Resource Center
LINK: Advice, advocacy, support Minneapolis-based

Liddy Shriver Sarcoma Initiative
LINK to electronic newsletter for sarcoma pts, providers, families, etc.

Brustkrebs – Initiative
Germany-based website for those with breast cancer

Cancer Connection Inc.
Center in Florence, MA for all cancer patients -social support in caring environment

National Coalition for Cancer Survivorship
National group with many links advice etc.

WINGS
A corporation that offers breast care in Central/South Texas, regardless of ability to pay

Women’s Cancer Network
LINK for information, other links

National Cervical Cancer Coalition
Information, support and more

Breast Cancer Organizations
Find links to local breast cancer groups. Some have achieved national recognition

Patient’s Friend Society – Jerusalem
Offering social services to women, including ‘women’s cancers’

Cancer Research Ctr of America
CRCA is dedicated to finding the major causes of cancers in humans at these sites: breast, cervix, pharynx, larynx, colon, rectum, liver and prostate.

Oral Cancer Foundation
LINK to organization

Ovarian Groups w/ Links
Many different groups, sites

Gilda’s Clubs Worldwide
Offering support groups and education

National Childhood Cancer Foundation
Help Cure Kids Website

Dia de la Mujer Latina
A culturally appropriate health fair, providing breast/ cervical educ&screening and preventive healthcare svcs.

The Mautner Project
Direct services for lesbians, their partners/ caregivers

Well Spouse Foundation
LINK to org for the caregiver/ partner

Breast Cancer Action
San Francisco-based advocacy strong perspectives, environmentally active-takes no money from pharmaceutical companies

Women’s Cancer Resource Center
LINK to N. CA-based info, referral helpline, library, legal assistance, support, outreach and more

DIPEx – Database of Individual Patient
LINK to UK site offering news and individuals’ comments

Canadian Cancer Resources
Variety of LINKS

Deaf & Hard of Hearing Site for Women
LINK to breast cancer info

Sites outside the USA &Other Languages
LINKS to cancer sites around the world Open to see them ALL

Roaring for a Cure
LINK to site that suggests letters to raise research $$$

Casting for Recovery
LINK to providers of “fly-fishing retreats specifically tailored for women who have or have had breast cancer”.

Brain Cancer & Brain Metastases
articles, studies, etc.

Organizations for Mesothelioma
LINKS to groups dealing with Mesothelioma

Mountain Laurel Center
LINK to Southwest Virginia Cancer Support/ Resources

The Turning Point
LINK to Center for Hope and Healing Shawnee Mission, KS

Asian American Network for Cancer Awareness, Res & Training
LINK to website with info for Asian Americans

Research Advocacy Network
LINK to site where advocates learn about participation opportunities/newsletter

Lung Cancer Advocacy/ Support Groups
Links to groups

Pancreatic Cancer Groups
LINKs to advocacy, support, information (Includes information on Nicholas Gonzalez, MD and nutritional approaches)
Pancreatic Cancer Action Network
Support, education links
Pancreatica
LINK-scientific/medical info plus clinical trials
Nicholas Gonzalez, MD
LINK to Nick Gonzalez, MD- works with supplements, diet detoxification. Announced 6/99 he has approved CLINICAL TRIAL for pancreatic cancer patients.
The National Pancreas Foundation
LINK to group that grants to researchers looking at pancreatic disease, also SUPPORT for individuals with disease

Colorectal Cancer Groups
Colon Cancer Alliance
Support, education advocacy
United Ostomy Association
LINK to group dedicated to reducing colostomy surgeries PREVENTION oriented
Colorectal Cancer Coalition
LINK to c-three,info education, resources
Colorectal Ca Coalition: Reflections on the Future
LINK to article in The Oncologist October 2006
Colon Cancer Solutions
LINK to South Carolina-based advocacy. “Our goal is to inform the public of the effects of having colon cancer as well as to raise awareness of the many accessible methods of prevention”. They state they will help everyone.
Lynch Syndrome
LINK: “an hereditary disorder caused by a mutation in a mismatch repair gene in which affected individuals have a higher than normal chance of developing colorectal cancer, endometrial cancer, & various other types of aggressive cancers, often at a young age – also called hereditary nonpolyposis colon cancer.” (HNPCC)

Leukemia and Lymphoma Groups
LINKS to various organizations

Children’s CHARITABLE, Support, Education Orgs
LINKS here

Saunders-Matthey Cancer Prevention Coalition
LINK to Canadian site with emphasis on Environmental issues

Friend for Life
LINK to “non-profit support network of cancer suvivors who serve the emotional/psychological needs of recently diagnosed and family. All free of charge

PROSTATE Cancer Groups Links
various links

Retreats/ Spas/ Healing Places
Links and information

Concerned Citizens to Combat Cancer
LINK to group “representing various community service agencies & individuals united in their desires to reduce the high rate of cancer incidence & mortality among the underserved population in the State of Florida”.

Testicular Cancer Links
Testicular Cancer Info
Source: Princess Margaret Hospital, Toronto, Canada
TC-Cancer

Greater Washington Coalition for Cancer Survivors
LINK to Washington, DC group.

The Carcinoid Awareness Network, Inc.
LINK to LI-based organization

Fighting Chance
LINK to LI-based organization offering “life skills for cancer patients”

Head and Neck Organizations
Oral Cancer Foundation
LINK
Support for People with Oral & Head/Neck Cancer
LINK to patient-directed, self-help organization dedicated to meeting the needs of oral and head and neck cancer patients. SPOHNC, founded in 1991 by an oral cancer survivor, addresses the broad emotional, physical and humanistic needs
LarynxLink
LINK to comprehensive source for laryngectomee and larynx cancer information, and laryngectomee rehabilitation resources
Esophageal Cancer Awareness Assn
LINK to support/information org
Adenoid Cystic Carcinoma Org Int’l
LINK: Mission is to create a worldwide community…”

Moments with Mary
Link to inspirational site from long-term survivor in MO.

General/ Support Cancer Links
LINK to a variety of sites of organizations with a general focus on cancer issues

Carcinoid Organizations
Carcinoid Cancer Awareness Network, Inc.
LINK to organization with lots of information
Carcinoid Cancer Awareness Network, Inc.
LINK to organization with lots of information
Carcinoid Group
LINK encouraging and supporting research and education on carcinoid tumors and related neuro-endocrine neoplasms

Sarcoma Organizations
Sarcoma Foundation
Link togroup that advocates for increased research to find new and better therapies
Sarcoma.Net
LINK to information from Dana Farber Cancer Ctr/ Dr. George Demetri

Soft Tissue Sarcoma People
LINK to European org, info, resources, personal experiences
The Sarcoma Alliance
Guidance, education, support to enhance the lives of sarcoma survivors
Gastrointestinal Stromal Tumor Support
LINK to patient group with information and MUCH more

Young Adult Patient/ Survivor Groups
A growing area for advocacy – many links here

Bladder Cancer Patient Organizations
Federation of Bladder Cancer Patients
LINK to international group
Bladder Cancer Advocacy Network
LINK to 1st USA-based national patient ADVOCACY group
American Bladder Cancer Society
LINK to “site for and by bladder cancer survivors and the people that care for them”.

Skin Cancer & Melanoma Organizations
Skin Cancer Foundation
LINK for resources
Melanoma Research Foundation
LINK to group that supports Research, Education and Advocacy, runs teleconferences
American Melanoma Foundation
LINK – ‘raise awareness, educate on risks, prevention, advocate for research, fund research
On Top of Cancer
LINK to support group online, chat room,information, and more
Melanoma Patients’ Information Site
LINK to “noncommercial site founded to provide support and information to melanoma patients and those who care for them.”

SAATH
LINK to group for SE Asians in the US (headquarters in Southern CA) Offering Cultural competency training to healthcare professionals & support to patients

Health Links for LGBT Community
Many LGBTI health links

National Kidney Cancer Association
LINK Their 1999 conference offered a full day on complementary/alternative therapies.

Teens Cancer Group Links
varied

Gilda’s Club Living Room
LINK: Online cancer support from the partnership of the Wellness Community and Gilda’s Clubs

Cancer Prevention and Treatment Fund
LINK: DC-based “helps children & adults reduce their risks of getting all types of cancer, & assists them in choosing the safest & most effective treatments”.

Adenoid Cystic Carcinoma Organization International
LINK: “help find a cure for ACC, & create a community that shares information in an atmosphere of support”.

Cancer Awareness, Resources, and Education
LINK: Excellent program at San Francisco General Hospital

Drug Watch
LINK: “A to Z index with updated index of recalled drugs, info on common ‘side’ effects and more”

Council of Dads
LINK: Group set up to aid fathers with cancer by promising ‘be there’ for their children

Desmod Tumor Foundation
LINK:”DTRF.org, has become a clearinghouse of information on desmoid tumors and research, reaching physicians, researchers and patients around the world”

Single Women with Cancer Foundation
LINK: Miramar, FL organization – “Education, health, wellness and safety

Friends of Mel Foundation
LINK: New England-based group “It was Mel Simmons’ unique talent to lift the spirit of everyone who came in contact with her. She touched many other cancer patients and their caregivers. As a tribute to Mel, the Foundation was created to continue her work.
The mission of the Friends of Mel is to provide quality cancer care for the whole patient by funding cancer research, education and support”.

Foundation for Womens Cancer
LINK: “to increase awareness & education, support expanded research & training, & provide knowledge and hope for women diagnosed with cancers specific to them.


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